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jellybean02138 t1_j2akt2g wrote

Do they not qualify...? It's not a benign treatment , and if you have no real risk factors, there's really no benefit to taking it.

How early is early onset Alzheimer's? Seems quite odd that you call them "young" but also say that they have early onset Alzheimer's... Early onset is like 40s-50s. Not "young"

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[deleted] t1_j2alusi wrote

[deleted]

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Ok_Purpose_1606 t1_j2arfhs wrote

I'm confused is having increased risk of a disease, but not actually having it, considered being at increased risk for severe COVID? Seems like that's using the transitive property which I don't think is how it works.

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earlgreyyuzu OP t1_j2at8t6 wrote

Yes it does. If you have a genetic predisposition for cancer, dementia and other neurological conditions, you’re at risk of getting long covid and exacerbating the chances that you’ll get the illness earlier.

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Ok_Purpose_1606 t1_j2b9rzm wrote

Here's the thing, paxlovid is to treat people who have a risk of primary complications with COVID as in they are at risk of getting severely sick from their COVID infection itself not secondary long term complications of having COVID. That may be why you got the push back.

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earlgreyyuzu OP t1_j2boj8s wrote

And you're knowledgeable of my partner's health and total lack of risk factors based on one example I gave?

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DryLavishness8098 t1_j2ay37y wrote

COVID is showing an increased likelihood of neurological-deficit conditions across the board - including Alzheimer's. That makes OP's partner low risk.

You really need to read the recent literature more to speak as confidently here as you have, because you've clearly not done that.

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Ok_Purpose_1606 t1_j2b7moe wrote

I was asking a question, and I literally said "I'm confused"...

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jellybean02138 t1_j2aoais wrote

Maybe if you're going to post on the internet about something maybe you should provide more details. It says he has a risk factor of "early onset Alzheimer's" (says nothing about his mother ...). That's not a risk factor. He clearly doesn't qualify for paxlovid and doesn't necessarily need it. That's why he's been blown off.

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earlgreyyuzu OP t1_j2asifn wrote

What part of “other risk factors” do you not understand? If we know we have the risk factors, we don’t need strangers telling us we don’t. I’m not going to list online all his personal health details, which is beside the point anyway. I asked for places to get a paxlovid prescription, not for strangers to judge qualification. Other people understood this and I got many helpful responses, so my partner was able to get the prescription BECAUSE HE QUALIFIES. Kindly don’t get paxlovid for yourself if you’re so against it.

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DryLavishness8098 t1_j2ay7zv wrote

It's incredibly ableist that people are trying to argue this point with you, and the point you're making is backed up by the literature we have so far around COVID effects on the brain - so just know, the stupidest are often loudest. You're doing the right things for your partner and I hope you were able to get Paxlovid.

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Ok_Purpose_1606 t1_j2bj0n8 wrote

It's not ableist. Paxlovid is literally only approved for people who have an increased risk of developing severe primary disease NOT for people who are at risk of developing early onset secondary diseases. This is in the actual drug literature and in the FDA emergency approval. I'm saying this as a cancer patient who is at risk of getting severe primary disease. You're not necessarily wrong, but Paxlovid is not yet approved for everyone.

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DryLavishness8098 t1_j2bl6ik wrote

I hear that you're a cancer patient (and I'm sorry for that) but the argument itself is ableist. In NY you test positive, you call a hotline and get Paxlovid delivered to your house same-day - it's approved for everyone. In California, you test positive and you get Paxlovid from your PCP - it's approved for everyone. I'm not sure where you're located but please consider updating your information before you go around telling people not to avail themselves of perfectly acceptable preventives.

Early intervention lessens the risk of long-COVID. That is also in the literature. It's fine. There is no reason OP's husband should not access treatment.

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Ok_Purpose_1606 t1_j2bm50c wrote

Paxlovid.com "PAXLOVID has not been approved, but has been authorized for emergency use by FDA under an EUA, for the treatment of mild-to-moderate COVID-19 in adults and pediatric patients (12 years of age and older weighing at least 40 kg) with positive results of direct SARS-CoV-2 viral testing, and who are at high risk for progression to severe COVID-19, including hospitalization or death."

I don't interpret that as authorized "for everyone." Show me where you're getting your info from where anyone can be prescribed Paxlovid?

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DryLavishness8098 t1_j2f0skm wrote

This is such a bizarre hill to die on. I'm getting my info from the NY State website and CA state websites. Have a good week.

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