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throwawaitnine t1_jea7eu5 wrote

Hey OP, can't help you on a recommendation. I just want to say I understand what you may be experiencing and I'm sympathetic.

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pleeplious OP t1_jeajwj0 wrote

Hey thanks a bunch. What I am learning is that ALS is nasty because the person you know so well essentially changes in front your eyes. It’s horrible for everyone. Obviously the person with the diagnosis gets it the worst. I am a secular humanist (aka an atheist) so its tough to know that good bye means a permanent goodbye. I am envious of religious folks. They have at the least a “promise” of seeing their loved one again.

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throwawaitnine t1_jeatcnn wrote

I try not to proselytize, I think it's rude. I went through a similar thing with my own dad, FTD. I found solace in my religion during that time not because I thought of seeing my dad as he was in the next life, but because it was such a struggle to understand how something so horrible can happen to a person, to a family. For me religion was a way to tell myself that things happen in life that we don't understand but there is still a meaning to it.

I hope you can find that inner peace for yourself in your own way. Anytime you feel like you are going through this and you just want to vent, you can send me a private message, anytime. No talk about religion, just someone to talk to who knows what it's like.

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pleeplious OP t1_jeathvl wrote

Hey. Thank you so much. Means a lot. Sincerely.

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