Some people suffer with connective tissue disorders for 30 years without diagnosis because doctors don't believe them and they only get a diagnosis when it presents as something life threatening like Aortic Dissection or Brain Aneurysms when the patient has been dealing with Postural Orthostatic Tachycardia since they were a teen but felt as if this was normal for everyone or was allergic to everything. People with Marfans and Ehlers Danlos Syndrome both face these potential problems.
MahjongNucleus t1_itnmior wrote
Reply to comment by restednready in TIL Michael DeBakey, developed over many years the technique of replacing the damaged aorta with a tube made of polyethylene terephthalate. He himself suffered aortic dissection at the age of 97 and survived for two years thanks to the technique he developed himself. by Bobba_fat
Some people suffer with connective tissue disorders for 30 years without diagnosis because doctors don't believe them and they only get a diagnosis when it presents as something life threatening like Aortic Dissection or Brain Aneurysms when the patient has been dealing with Postural Orthostatic Tachycardia since they were a teen but felt as if this was normal for everyone or was allergic to everything. People with Marfans and Ehlers Danlos Syndrome both face these potential problems.