the_real_mvp_is_you
the_real_mvp_is_you t1_j0xfruz wrote
Reply to comment by LePlaneteSauvage in Gene therapy gel heals decades-old wounds in trial for blistering skin disease. Researchers find that a gel tested in patients with a life-threatening blistering skin disease helps wounds heal. The gel — the first topical gene therapy — awaits FDA approval. by Zee2A
I have EBS localized that I inherited from my father. These study results are great news.
I've described walking on blisters like walking on coals or a bed of nails or broken glass. It's so much worse when they're in an area that cycles. I've had blisters last for three to four months in one area. I can still only imagine the pain that those with RDEB suffer from.
They call us all butterfly people, but my skin is tough as leather compared to theirs. And that's not even going into JEB.
the_real_mvp_is_you t1_j0xf40w wrote
Reply to comment by damon459 in Gene therapy gel heals decades-old wounds in trial for blistering skin disease. Researchers find that a gel tested in patients with a life-threatening blistering skin disease helps wounds heal. The gel — the first topical gene therapy — awaits FDA approval. by Zee2A
Insurance covers a lot of things for these people since most of those with RDEB are on Medicare.
the_real_mvp_is_you t1_j0xeprg wrote
Reply to comment by rclaybaugh in Gene therapy gel heals decades-old wounds in trial for blistering skin disease. Researchers find that a gel tested in patients with a life-threatening blistering skin disease helps wounds heal. The gel — the first topical gene therapy — awaits FDA approval. by Zee2A
If this was treating EBS then the published results would have said that. Having DEB was definitely a criteria when they were recruiting. I saw the recruitment go out from DEBRA.
the_real_mvp_is_you t1_j0xpesl wrote
Reply to comment by rclaybaugh in Gene therapy gel heals decades-old wounds in trial for blistering skin disease. Researchers find that a gel tested in patients with a life-threatening blistering skin disease helps wounds heal. The gel — the first topical gene therapy — awaits FDA approval. by Zee2A
No worries. There are a lot of sub types of EB and it can be hard to keep them all straight if you're not living with it, or studying it.