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TheSpanxxx t1_iuvw6dd wrote

My dad, now 76, was about 38 when he started having severe pains wracking his body. After more than a year of visiting doctors to look for an explanation he finally visited Mayo clinic and saw specialists. They did many tests and were able to discern he had an incredibly rare (as in less than 20 studied cases in the world at the time, rare) disorder with comorbidities that complicated his issues even further.

He's not had a great life physically, sadly. He tried, but his body has failed in so many ways it's hard to describe. But, he was able to receive treatment and have a life. Physically, he is miserable but he is still here and he can do a few things so he keeps plugging away.

I'm sorry to hear about your diagnosis and disease at such an early age. Do everything you can to fight it! And this application you are promoting could help change lives. Keep at it!

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Abishek_Muthian OP t1_iuwyvtm wrote

It pains to imagine what your dad must have undergone, It's been a hell for me since I was diagnosed among with other existing disabilities.

Thank you for sharing your dads story it gives hope to me and others like me to keep fighting.

You talking about your dad's health issues seems like you have him at very high regard, I wish you and your dad my best.

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