Thank you for taking the time to comment, I've gained more information about various possible causes through this thread than I did in all previous years.

My doc does say that my body is not absorbing Calcium but no effort was made to find why. I'm adding tests for Hypercalciuria to my list of tests to be made.

Thank you again!

Mainly body weight and lifting weights; The latter I've stopped recently as I've mentioned here - https://www.reddit.com/r/InternetIsBeautiful/comments/ykc49d/comment/iuukrbk/

Thank you for your detailed clarification, I realized para-thyroid could be different from usual thyroid gland anomaly only after my previous comment.

Your comment offers clear view of the distinction, I will get tested for the para-thyroid as well.

I feel you've done well by indulging in your research instead of blindly relying on diagnosis of a medical professional, There seems to be a general lack of scientific curiosity among medical practitioners treating bone diseases; I believe this comes from the fact that it's usually the elderly who come seeking treatment from them.

I'm sorry for your loss and thanks for sharing the story of your husband's ailment.

I haven't noticed blue tint in my sclera and I usually check my eyes quite regularly. But I do suspect some underlying genetic disease as a cause for my Osteoporosis other than my existing disabilities (Achondroplasia). I'm planning to get a genetic test as well.

The real MVP in this thread are people like you sharing the stories of their ailments or that of their loved ones. This will give necessary direction to many people for years to come.

Thank you, I will look up the registry.

I was diagnosed with Osteoporosis when my spine fractured and lead to spinal stenosis. I already suffer from Achondroplasia.

Although I seek treatment for Osteoporosis from an endocrinologist, There no real interest in investigating the cause and neither there's communication between the endocrinologist and the spine-ortho. Albeit one of the best ortho hospitals in the country.

I'm planning to look out for another endocrinologist who's willing to indulge in investigating my condition.

I'm getting treated only for the symptoms as well with biphosphate injection every year, Since I already have Achondroplasia(Dwarfism) I think there's no real interest to investigate the cause; Besides its the scientific rigor needed is not available where I live.

It pains to imagine what your dad must have undergone, It's been a hell for me since I was diagnosed among with other existing disabilities.

Thank you for sharing your dads story it gives hope to me and others like me to keep fighting.

You talking about your dad's health issues seems like you have him at very high regard, I wish you and your dad my best.

I'm from India.

Good balance between productivity and performance.

Hi, It was done on purpose. The repo is just a development branch and secrets don't have any real secrets. I committed the file for the ease of reproducibility.

Thanks for watching out.

I know the feeling mate, But we might have to fight the battle for others around us or at least as a middle finger to the indifferent universe which is always trying to kill us.

Thank you for those resources, I'm in India but it would help others from US here.

What triggered you to get diagnosed for HPP?

Edit: Typo

I presume it was tested among several other tests I had but I will have to get it tested again.

Does your wife take treatments for both Parathyroid and Osteoporosis now?

I was diagnosed with Vitamin-D deficiency when I was a child and I took supplements.

Now the Vitamin-D is at normal levels in-spite of osteoporosis, Likely because of the Alpha D3 supplements.

Doctor did say that my calcium absorption is low, But no investigation was done to why. Vitamin D supplements seems to be a standard course of action.

I'm sorry, But 10,000 steps/day is actually a scam; It was a marketing tactic by the first step counter companies.

Consider using Bone Health Tracker for tracking the progress of your treatments.

Thank you very much, I will add support for that extra data with you can share the assessment section with me, I will message you in the chat later. The BMD report specs seem to change a bit with different countries, Although I have included all major bone sites from my research.

As for your condition, I believe your doctors have come to a conclusion that calcium intake could fix it before trying out the steroids; The tests are only done annually and I see only minor improvements with my osteoporosis but some decent improvements with osteopenia over past 5 years with steroids.

But steroids would like have side effects in the long run and so calcium+exercise seems like the best bet for your Osteopenia and likely what the doctors think too. You'll see a change next year.

I assume my thyroids were tested as part of my other tests previously, But I have to test again.

Were you diagnosed with Osteoporosis? Btw, There are no doubts that I have brittle bones as I've explained in other comments due to my fractures and the surgeries I had to undergo to fix them.

Thank you for looking out for your friend, My best regards for your friend.

Please check my other comment about strength training.

Thanks for sharing, I have already faced consequences of brittle bones incl. nearly ending up as a quadriplegic as my cerebral spine fractured without even me knowing about it.

So there's no doubt whether I have brittle bones, The doubts are why I have them and which might very well be a rare disease like yourself instead of Osteoporosis. There are other comments which suggests Hypophosphatia.

I like to call my self that, Then I realize he became an evil MF :(

Lol, I agree. I must have seen the website hundreds of time now and yet I didn't see it till you found it out. Keep doing the good work!

Thanks for sharing, There are others like us in the comments.

Please considering using Bone Health Tracker with your BMD test reports.

I don't think there's concrete answer for that, Like any other disorder which affects only elderly (most of time) it gets little investment for scientific research.

This needs to chance as majority of world population would be old soon.