pursual

pursual t1_j59zhlt wrote

Reply to comment by CrohnsBoyTheThird in Currently in Hospital with Severe Crohn's Disease - AMA ! by CrohnsBoyTheThird

I agree completely. For me it was all desperation. I was in a Yahoo group of fellow sufferers, and there was a discussion about an Australian doctor who had published a study in which he cured 20 people of colitis via fecal transplant. Some members of the group ended up going to see him. I couldn't afford to go, but I was able to download the complete paper he published via my brother's university account. It had a complete procedure. I basically just copied it, at home. My dad is a microbiologist, and my mom was a nurse, but it was simple enough for anyone to copy.

Since then a lot has happened in the fecal transplant space. I know there are freeze dried encapsulated pills that are used today. I think the most common disease that gets fecal treatment is c difficile. I doubt it's very easy to find a doctor that is knowledgeable about the space, and get in line for treatment, but there is definitely something to it with certain types of colitis/chrons.

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pursual t1_j59uz9k wrote

Reply to comment by CrohnsBoyTheThird in Currently in Hospital with Severe Crohn's Disease - AMA ! by CrohnsBoyTheThird

I went to Morocco twice, I got sick both times. The second time I never got better, and after a very slow decline I eventually had colitis and Crohn's for years. Whatever it was that I caught in Morocco had altered the makeup of my gut flora. I tried special diets, probiotics, everything, but it wasn't until I had a fecal transplant that things changed.

I definitely feel for you man, those were some hard years. I remember buying Asacol from Mexico because I didn't have insurance. I remember going to a porta potty at a flea market, and seeing a huge turd in the bottom, and being jealous and wondering if I would ever make a turd like that again.

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