Submitted by Dismal_Exchange1799 t3_1144ti2 in RhodeIsland
Hi all. I’m 27, disabled, living in PA, and currently have Medicare, SSDI, and Medicaid (keystone first).
I have the home and community waiver here in PA that allows me caregiving hours. I receive 24 hour care because I am considered to have a high level of disability. I use a power chair, breathing support, and have a feeding tube. My disability is progressive and often fatal.
The issue is that I’d like to move. I have incredible Medicaid here in PA (specifically Philly) but I hate living here. I have family in both Boston and Providence.
I’m finding a lot of information about moving and re-applying in the new state you move— however, I’m not finding any info about if you’re on HCBS with caregiving hours like I am.
The problem is that I cannot be without care. I cannot have a lapse in coverage with my level of disability.
I would love to hear peoples experiences on medicaid in Rhode Island. Does RI have a caregiver home and community waiver? Can friends/family be paid to care for you?
sc00p401 t1_j8u7bvq wrote
Anything related to state assistance in Rhode Island is an absolute nightmare. My girlfriend moved here from CT just over two years ago, has been waiting ever since for her medical card and for SNAP to be transferred.